Pilot study of participating in a fatigue management programme for clients with multiple sclerosis.
Identifieur interne : 000387 ( Main/Exploration ); précédent : 000386; suivant : 000388Pilot study of participating in a fatigue management programme for clients with multiple sclerosis.
Auteurs : Frances Twomey [Irlande (pays)] ; Katie RobinsonSource :
- Disability and rehabilitation [ 0963-8288 ] ; 2010.
Descripteurs français
- KwdFr :
- Ergothérapie (MeSH), Fatigue (thérapie), Fatigue (étiologie), Humains (MeSH), Isolement social (MeSH), Mode de vie (MeSH), Pouvoir (psychologie) (MeSH), Prise en charge de la maladie (MeSH), Projets pilotes (MeSH), Recherche participative basée sur la communauté (MeSH), Recherche qualitative (MeSH), Réadaptation (organisation et administration), Sclérose en plaques (complications), Sclérose en plaques (rééducation et réadaptation), Sclérose en plaques (thérapie), Soutien social (MeSH).
- MESH :
- organisation et administration : Réadaptation.
- rééducation et réadaptation : Sclérose en plaques.
- thérapie : Fatigue, Sclérose en plaques.
- étiologie : Fatigue.
- complications : Ergothérapie, Humains, Isolement social, Mode de vie, Pouvoir (psychologie), Prise en charge de la maladie, Projets pilotes, Recherche participative basée sur la communauté, Recherche qualitative, Sclérose en plaques, Soutien social.
English descriptors
- KwdEn :
- Community-Based Participatory Research (MeSH), Disease Management (MeSH), Fatigue (etiology), Fatigue (therapy), Humans (MeSH), Life Style (MeSH), Multiple Sclerosis (complications), Multiple Sclerosis (rehabilitation), Multiple Sclerosis (therapy), Occupational Therapy (MeSH), Pilot Projects (MeSH), Power (Psychology) (MeSH), Qualitative Research (MeSH), Rehabilitation (organization & administration), Social Isolation (MeSH), Social Support (MeSH).
- MESH :
- complications : Multiple Sclerosis.
- etiology : Fatigue.
- organization & administration : Rehabilitation.
- rehabilitation : Multiple Sclerosis.
- therapy : Fatigue, Multiple Sclerosis.
- Community-Based Participatory Research, Disease Management, Humans, Life Style, Occupational Therapy, Pilot Projects, Power (Psychology), Qualitative Research, Social Isolation, Social Support.
Abstract
PURPOSE
The purpose of this study was to examine the experience of participating in a community-based fatigue management programme for people with multiple sclerosis (MS).
METHOD
Eight people with MS who participated in an 8-week community-based fatigue management programme were interviewed using a semi-structured, open-ended interview protocol. Data were analysed using constant comparative analysis informed by a phenomenological perspective.
RESULTS
Participants experienced ownership, active participation and empowerment. Participants' fatigue was legitimised and validated, and participants described a shared experience and shared voice. Outcomes identified by participants included: lifestyle and occupational changes, altered thinking about fatigue and the development of social supports.
CONCLUSION
Participants' experience of the community-based fatigue management programme was described in positive terms with unanticipated benefits and outcomes described.
DOI: 10.3109/09638281003656578
PubMed: 20175673
Affiliations:
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Le document en format XML
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multiple sclerosis.</title><author><name sortKey="Twomey, Frances" sort="Twomey, Frances" uniqKey="Twomey F" first="Frances" last="Twomey">Frances Twomey</name><affiliation wicri:level="1"><nlm:affiliation>Brothers of Charity (Southern Service), Lota, Glanmire, Ireland. frantwomey@eircom.net</nlm:affiliation><country xml:lang="fr">Irlande (pays)</country><wicri:regionArea>Brothers of Charity (Southern Service), Lota, Glanmire</wicri:regionArea><wicri:noRegion>Glanmire</wicri:noRegion></affiliation></author><author><name sortKey="Robinson, Katie" sort="Robinson, Katie" uniqKey="Robinson K" first="Katie" last="Robinson">Katie Robinson</name></author></analytic><series><title level="j">Disability and rehabilitation</title><idno type="ISSN">0963-8288</idno><imprint><date when="2010" type="published">2010</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Community-Based Participatory Research (MeSH)</term><term>Disease Management (MeSH)</term><term>Fatigue (etiology)</term><term>Fatigue (therapy)</term><term>Humans (MeSH)</term><term>Life Style (MeSH)</term><term>Multiple Sclerosis (complications)</term><term>Multiple Sclerosis (rehabilitation)</term><term>Multiple Sclerosis (therapy)</term><term>Occupational Therapy (MeSH)</term><term>Pilot Projects (MeSH)</term><term>Power (Psychology) (MeSH)</term><term>Qualitative Research (MeSH)</term><term>Rehabilitation (organization & administration)</term><term>Social Isolation (MeSH)</term><term>Social Support (MeSH)</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Ergothérapie (MeSH)</term><term>Fatigue (thérapie)</term><term>Fatigue (étiologie)</term><term>Humains (MeSH)</term><term>Isolement social (MeSH)</term><term>Mode de vie (MeSH)</term><term>Pouvoir (psychologie) (MeSH)</term><term>Prise en charge de la maladie (MeSH)</term><term>Projets pilotes (MeSH)</term><term>Recherche participative basée sur la communauté (MeSH)</term><term>Recherche qualitative (MeSH)</term><term>Réadaptation (organisation et administration)</term><term>Sclérose en plaques (complications)</term><term>Sclérose en plaques (rééducation et réadaptation)</term><term>Sclérose en plaques (thérapie)</term><term>Soutien social (MeSH)</term></keywords><keywords scheme="MESH" qualifier="complications" xml:lang="en"><term>Multiple Sclerosis</term></keywords><keywords scheme="MESH" qualifier="etiology" xml:lang="en"><term>Fatigue</term></keywords><keywords scheme="MESH" qualifier="organisation et administration" xml:lang="fr"><term>Réadaptation</term></keywords><keywords scheme="MESH" qualifier="organization & administration" xml:lang="en"><term>Rehabilitation</term></keywords><keywords scheme="MESH" qualifier="rehabilitation" xml:lang="en"><term>Multiple Sclerosis</term></keywords><keywords scheme="MESH" qualifier="rééducation et réadaptation" xml:lang="fr"><term>Sclérose en plaques</term></keywords><keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Fatigue</term><term>Multiple Sclerosis</term></keywords><keywords scheme="MESH" qualifier="thérapie" xml:lang="fr"><term>Fatigue</term><term>Sclérose en plaques</term></keywords><keywords scheme="MESH" qualifier="étiologie" xml:lang="fr"><term>Fatigue</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Community-Based Participatory Research</term><term>Disease Management</term><term>Humans</term><term>Life Style</term><term>Occupational Therapy</term><term>Pilot Projects</term><term>Power (Psychology)</term><term>Qualitative Research</term><term>Social Isolation</term><term>Social Support</term></keywords><keywords scheme="MESH" qualifier="complications" xml:lang="fr"><term>Ergothérapie</term><term>Humains</term><term>Isolement social</term><term>Mode de vie</term><term>Pouvoir (psychologie)</term><term>Prise en charge de la maladie</term><term>Projets pilotes</term><term>Recherche participative basée sur la communauté</term><term>Recherche qualitative</term><term>Sclérose en plaques</term><term>Soutien social</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><p><b>PURPOSE</b></p><p>The purpose of this study was to examine the experience of participating in a community-based fatigue management programme for people with multiple sclerosis (MS).</p></div><div type="abstract" xml:lang="en"><p><b>METHOD</b></p><p>Eight people with MS who participated in an 8-week community-based fatigue management programme were interviewed using a semi-structured, open-ended interview protocol. Data were analysed using constant comparative analysis informed by a phenomenological perspective.</p></div><div type="abstract" xml:lang="en"><p><b>RESULTS</b></p><p>Participants experienced ownership, active participation and empowerment. Participants' fatigue was legitimised and validated, and participants described a shared experience and shared voice. Outcomes identified by participants included: lifestyle and occupational changes, altered thinking about fatigue and the development of social supports.</p></div><div type="abstract" xml:lang="en"><p><b>CONCLUSION</b></p><p>Participants' experience of the community-based fatigue management programme was described in positive terms with unanticipated benefits and outcomes described.</p></div></front></TEI><affiliations><list><country><li>Irlande (pays)</li></country></list><tree><noCountry><name sortKey="Robinson, Katie" sort="Robinson, Katie" uniqKey="Robinson K" first="Katie" last="Robinson">Katie Robinson</name></noCountry><country name="Irlande (pays)"><noRegion><name sortKey="Twomey, Frances" sort="Twomey, Frances" uniqKey="Twomey F" first="Frances" last="Twomey">Frances Twomey</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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